Welcome.

Like many people with rare conditions, my journey started with symptoms that didn’t quite make sense. For months, I experienced fatigue, aches, and odd sinus issues. After a long trail of doctor’s visits, I was finally diagnosed with GPA—a rare autoimmune disease that affects blood vessels and can impact the sinuses, lungs, kidneys, and more.

It’s been a rollercoaster: hospital visits, learning about treatments I’d never heard of, and coming to terms with how much life can change. Some days are good, some are hard, but I’m still me—someone who enjoys quiet mornings, walks in nature, and a good book.

This site is for anyone facing similar challenges, whether you’re newly diagnosed, caring for someone with GPA, or just trying to learn more. I’m not a medical expert—just a fellow traveller on this winding road. Here you’ll find my honest stories, tips that make life a little easier, and resources I wish I’d had from the start.

If you’d like to share your own story, ask a question, or just say hello, you can do so anonymously too. We’re all in this together.